The CSF Leak Association
We’re a charity for CSF leak sufferers run by people directly affected by CSF leaks. The reality is that although leaks are more common than most of the medical profession apprecaite, we are still a relatively small group of patients.
We’re a small charity with big ideas and even bigger goals and in order to keep the pressure on and deliver our goals, we need more volunteers.
We will be advertising specific volunteer roles on our website in the future, but we have plans to form a number of focus groups to help us direct our work and review future publications.
Expressions of interest are welcome from current leakers, sealed leakers, carers, family members and other interested parties.
The time required won’t be too onerous and since we are ourselves leakers we will understand the need to be flexible.
Please visit www.csfleak.info/focusgroups
to read more and register your interest.