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LEAK WEEK / Day One

26 February 2018

Day One: What is a leak?

Hi <<First Name>>. It’s the end of Day One of Leak Week UK and, wow, what a day. 

The theme for today was ‘What is a CSF leak?’ and we shared lots of new resources and information through social media.  

You can check out a quick summary of it all here on our website: www.csfleak.info/leakweek2018/day-one
 

New content


Animations are a popular way in health advocacy of getting across basic information about a complex subject, in an accessible way.

So, not to be left out, this morning we launched our new animation explaining the basics of spinal CSF leaks:
It’s a short video, so it’s ideal for sharing with friends, colleagues and family.

If it turns into a conversation starter, we would be delighted to hear how your efforts to raise awareness went.
 
Message us on Twitter, Facebook or Instagram to keep the conversation going!
 

Leaker Profiles


This year’s Leak Week UK has its focus firmly fixed on people. First in the spotlight for our series of Leaker Profiles were Rachel Antcliffe and Jenni Pettican.  

Rachel is a spontaneous spinal leaker and her story may resonate with quite a few of you.  You can read her story at: www.csfleak.info/profiles/rachelantcliffe

Jenni experienced a spontaneous leak a few years ago but she was lucky enough to be ‘fixed’ and now lives a leak-free life (although she also suffers from PoTS and Ehlers-Danlos Syndrome).   

You can watch her video below:
 
If you’d like to see more of her story she vlogs on YouTube as ‘Chronically Jenni’ on YouTube.
 

Bite-sized Facts


Every day this week we’re releasing a few bite-sized facts, and today’s facts are:
 


 

Still to Come Tonight


This evening, the Kelpies will be bathed in blue light to mark the first day of Leak Week.  Stay tuned for some pictures (weather permitting!) tomorrow.
 

#WearBlueToo


Don’t forget to wear some blue this week and start some conversations.  Go hashtastic and whenever you're when uploading your pictures to Facebook, Twitter or Instagram, tag them with:
 
 #WearBlueToo   #CSFleak   #LeakWeek   #UprightHeadache
 
Click here to visit our Leak Week UK webpage
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