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27 February 2018

Day One: What is a leak?

Hi <<First Name>>. It’s been another successful Leak Week day and we'd like to say a very special thanks to all of you who reached out and told us how much you’re enjoying raising awareness.

Today's theme was ‘Symptoms’ and we shared links to a range of resources talking about symptoms of both spinal and cranial CSF leaks. We were also active social media, accompanied by loads of #WearBlueToo Facebook frames and photos!

You can check out a quick summary of it all here on our website:

New content

Symptoms of CSF leaks are many and varied.  They can bamboozle even the most thorough GP, so why not download and print out our infographic or overview leaflet to help you communicate with your doctors?

Our infographic talks about spinal CSF leak symptoms, while our overview leaflet covers both spinal and cranial symptoms separately:
Keep in mind that you don’t have to all of these symptoms before the possibility of a leak is entertained.
We also have a handy version suitable for uploading to and sharing via whatever social media platform takes your fancy. You can download this by clicking on the image above.

Leaker Profiles

Next in our series focusing on real people and their experience of leaks, we’re highlighting the Leaker Profiles of Kirsty Bonfield and John Jackson. 

Kirsty’s leaker journey started with numerous attempts to place an epidural needle for a pain-free labour on her first child. 

Unfortunately, Kirsty developed a CSF leak at the site of the injection and today, more than three years afterwards, and despite a blood patch, she is still suffering symptoms related to the leak.

You can read her story at:

John, meanwhile, experienced a spontaneous leak that may be related to an incident while surfing.  He was successfully treated with glue patches, but his issues returned with a rare presentation of a leak – a CSF venous fistula. 

You can see his video below:
John Jackson - Life with a Cerebrospinal Fluid (CSF) Leak

Bite-sized Facts

Every day this week we’re releasing a few bite-sized facts, and today’s facts are:


Last Night the Kelpies Came to Blue!

Yesterday, a contingent of CSF Leak Kilt Riders made a bitterly cold trip to see the Kelpies lit up in blue light to mark the beginning of Leak Week. 

Special thanks goes to Scottish Canals for their support, to Ray Michael for arranging the photo-shoot and, last but not least, to the hardy souls who ventured out with snow en route from Siberia!



Don’t forget to wear some blue this week and start some conversations.  Be creative with how you wear blue – in Leak Week, anything goes! 

And if you don't have anything blue to hand, you can always add our Facebook Frame or Twitter Twibbon frame to get in on the action.

Don’t forget to add some hashtags when uploading your pictures to Facebook, Twitter or Instagram:
 #WearBlueToo   #CSFleak   #LeakWeek   #Headache #UprightHeadache
Click here to visit our Leak Week UK webpage
Copyright © 2018 CSF Leak Association, All rights reserved.

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