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#FacesOfSCD Storytelling

The Faces of SCD storytelling program is an initiative to address stigma and other challenges faced by the SCD community – by giving a larger platform to patients, families, and caregivers. Sick Cells aims to help people understand this misunderstood disease by sharing stories of resilience and creating change.

Sweet Home Chicago

Sick Cells kicked off our #FacesOfSCD storytelling program last weekend in Chicago. Although it rained for most of the morning, the event carried on. We talked to SCD families about topics ranging from school, drug development, and the opioid epidemic. Thank you to all who came out, despite the weather conditions. 

We'll publish these amazing stories soon!

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Dennis, 61, (SCD hgb ss) interviews with Sick Cells volunteer Depreece.
Sickle Cell Disease Association of Illinois 

Thank you to SCDAI and their Executive Director, Talana Hughes, for inviting Sick Cells to join the walk and speak with so many brave families. 

Read below for a couple snippets from our interviews:

Reginald, Reggie Jr. and April 

We're constantly told by our team of hematologists that we ask a thousand questions. We ask them to break it down in layman's terms. We bounce ideas off of them, whether it's natural or other medicines.

Study, read, learn, talk, ask. Be informed. Be aware. 

Danielle 

My daughter, my youngest, has SS. I didn't know I had sickle trait until my first son was born. We didn't know daddy had sickle trait until seven days after Olivia was born. That's when we found out. This was in 2010. 

Thank you to our Sponsors

Through many kind donations and our corporate sponsors, Sick Cells is able to tell these powerful stories. 

If you couldn't make it to Chicago but want to see more stories come to life, please donate by clicking the link below. 
Donate Today!
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