The Sickle Cell Treatment Act (Bill S. 2465) Passed the Senate! 

Senate bill S.2465 (the Sickle Cell Treatment Act) passed the Senate on October 11. The bill is currently in the House and needs your help. Contact your current House Representative before the year is over. Ask them to consider S.2465 for a vote this year. 

If you don't know how to contact your House member, we've included a handy toolkit with instructions below. This toolkit was created in collaboration with Sick Cells, Sickle Cell 101, The SickleCellForum, #BoldLipsforSickleCell, the EveryLife Foundation, and the Sickle Cell Disease Association of America (SCDAA).

What's in the Toolkit? 

The team created tools to make contacting your House member easy. You can click on the content items below to access each guide. 
     Email or Call House Member
     Participate on Social Media
     Additional Bill Information
When contacting your House members, be sure to use hashtags #S2465 #VoteSickleCell
Send an Email or Call Your House Member

The EveryLife Foundation made an action alert for S.2465 the Sickle Cell Treatment Act using the SCDAA's letter. The action alert sends an automatic email to your House member. It's easy. 

To send an email, follow these steps:
  1. Click on the Action Alert. Here is the link.
  2. Scroll to the bottom of the page. Make sure you read the information!
  3. Fill out your street address and zip code. Click OK and wait for your House member's contact information to appear.
  4. An automatic letter will generate. You can use the automatic letter or write your own. 
  5. Fill in the rest of the information.
  6. Click send! 
The email generator will also show your House member's phone number. Give them a follow-up call. 
The pictures below highlight the steps for sending an email to your House member. 
Participate on Social Media
#S2465 #VoteSickleCell

You can also contact your Member of Congress by tweeting, posting on Instagram, sharing on Facebook, or doing all three. 

Sickle Cell 101 and #BoldLipsForSickleCell made graphics. Download the graphics from this email, tag your House member, and post on social. Make sure to use hashtags #S2465 #VoteSickleCell
Click on graphics below to download and repost on social media. Make sure to tag your House member!
Sickle Cell Forum created tweets. To send a tweet, click here to locate your House member's Twitter handle. Copy one of our tweets, insert your House member's twitter handle and send. 
  • We need #S2465 to expand research in Sickle Cell Disease and to find a cure. @RepHandle please consider S2465 for a vote this year to pass the bill! #VoteSickleCell #S2465
  • Please consider #S2465, @RepHandle! Join your colleagues in supporting research, surveillance, prevention and treatment for Sickle Cell Disease. Show Sickle Cell patients that you support them in every way. #VoteSickleCell #S2465  
  • @RepHandle, we need your support on #S2465! This bill will reauthorize a Sickle Cell prevention and demonstration program. For patients and caregivers this program can save lives. Please consider S2465 for a vote this year and stand with patients. #VoteSickleCell #S2465
Additional Bill Information

What's the Rush? 
The current House still has four weeks to work this year. The time between the new House being sworn in and the current House finishing their terms is called lame duck session. Many bills, like S.2465 get passed during this time. 

How long do we have? 
The current House has only four more weeks of work:

  • November 13-16
  • November 26-30
  • December 3-7
  • December 10-14

With the election over and the new House transitioning, we have to make sure that the S.2465 Sickle Cell Treatment Act is voted on this year. There is a chance that they can miss it during the transition. 

What is the History of the the Sickle Cell Treatment Act? 

In 2017, Rep. Danny Davis introduced House Bill HR2465 the Sickle Cell Disease Treatment Act of 2017, to the House of Representatives. The bill passed the House to the Senate on February 26, 2018. 

In the Senate, Senators Cory Booker and Tim Scott introduced the companion bill S. 2465 the Sickle Cell Treatment Act of 2018. To pass the Senate, Sens. Booker and Scott added additional language "heritable blood disorders." 

The bill is now with the House to approve the new language. 

Does the New Language Hurt Sickle Cell Disease?

Nope! The addition of the new language helped the bill move through the Senate. In fact, this is the fastest this bill has ever moved through Congress. It is very rare that a bill will be signed into law if it only supports one disease - so this is amazing progress.  

The SCDAA, the American Society of Hematology, and many other parties worked hard to ensure that the bill will still focus on sickle cell disease. For more information on the bill, you can visit the SCDAA's

One last thing: Please forward or share this toolkit with others that could use it. Join us today to help get S.2465 through the last step and passed this year!
Sick Cells
Sickle Cell 101
SCD Forum
Copyright © 2018 Sick Cells, All rights reserved.

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