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July 2022

From William Repicci, President & CEO

Over the course of the past few years, there have been so many successes in the fight for lymphatic diseases. Case in point: when I joined LE&RN, there was one major research conference focused on lymphatics. Fast forward, after just returning from speaking at the Keck School of Medicine at USC Lymphedema & Related Disorders Symposium, the next few months offer our community the following conferences: 

  • National Institutes of Health’s Yet to Be Charted: Lymphatic System in Health and Disease (09/19-20/2022)

  • LE&RN’s Virtual Summit The Clinician-Patient Interface in State-of-the-Art Diagnosis & Management (09/30/2022)

  • Boston Lymphatic Symposium (10/01/2022)

  • American Venous & Lymphatic Society Congress (10/13-16/2022)

  • The Lipedema Project’s Lipedema & Lymphedema Heart to Heart (10/21-23/2022)

  • Gordon Research Conference in Lymphatics (10/30-11/05/2022)

In addition to LE&RN’s involvement and participation in all the above, I’m honored to be moderating and speaking at lymphatic and lymphedema sessions at the United International Phlebology Conference and the Turkish Lymphedema Congress, both in Istanbul in September.
 
Interest in lymphatics has never been greater. We look for this momentum to lead us to our goal of new treatments and cures. This will take research funding, which is why I so look forward to Dr. Stanley Rockson’s (Stanford University and LE&RN co-founder) upcoming lymphedema drug clinical trials sponsored by Celltaxis, Inc. You will be hearing more about this during the month of August as the study gets under way. I think about the seismic change that would occur if even one drug is proven effective in treating lymphedema (LE). If this is possible, then the mandate to the National Institutes of Health (NIH) to increase research funding becomes even stronger. Might big pharma, which has ignored LE to date because of lack of basic research to guide their hand, suddenly see the possibilities before them? You have helped us set the foundation from which the treatments of tomorrow will grow. Take pride in your role in this journey as we look for our next set of goals to be realized.

With great pleasure, I present our latest issue of Lymphedema & Lymphatic Disease Matters.

2022 LE&RN Centers of Excellence Lymphatic Summit

$25 Early Bird Special thru August 31st; $35 beginning September 1st

Lymphatic Disease: The Clinician/Patient Interface in State-if-the-Art Diagnosis and Management will be presented online in its entirety on Friday, September 30, 2022.

The diagnostic and therapeutic approaches to lymphatic diseases are rapidly evolving and becoming increasingly sophisticated. This long-awaited evolution has created an imperative for health care professionals to embrace these skills and the research support for their appropriate utilization. In parallel, it is important that health care professionals comprehend the profound impact of lymphatic disease and its treatment upon function and quality-of-life. To this end, this year's Summit will highlight state-of-the-art clinical management techniques and the patient user interface with both disease and its management. Evolving concepts and unanswered questions will be emphasized.

The Centers of Excellence Summit is hosted by Stanford University School of Medicine and LE&RN. It was organized and will be chaired by Stanley G. Rockson, M.D., the Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University.

The Summit is considered appropriate for both health care professionals and patients and their families. Medical professionals can receive 5.25 Continuing Medical Education (CMEs) credits by attending. Replays will be available after the Summit until 11/01/22.

If you are a researcher or a medical school student, please email LERN@LymphaticNetwork.org to apply for a complimentary ticket.

Register at this weblink

Save the date for the 5th annual Boston Lymphatic Symposium!

The Boston Lymphatic Center, a joint program between the Beth Israel Deaconess Medical Center and Boston Children’s Hospital, teaching affiliates of Harvard Medical School, will host the 2022 Boston Lymphatic Symposium! The Boston Lymphatic Center is a Comprehensive Center of Excellence and the Symposium is held in partnership with the Lymphatic Education & Research Network (LE&RN).

This year's Patient Symposium is about "Life in Balance with Lymphedema" and will be held on October 1, 2022, at the Salve Regina University, 100 Ochre Point Ave in Newport, RI. Replays of last year's Boston Lymphatic Symposium are now available as replays at this link

Visit www.bostonlymphaticsymposium.org

Run Wild with LE&RN on October 9th!

Join LE&RN at the Philadelphia Zoo on Sunday morning (registration at 7am; Walk at 8am), October 9th for the first-ever in-person Philly/Tri-State Run/Walk to Fight Lymphatic Diseases. The Zoo won't open to the public until 10am and we'll have this magnificent space to ourselves as we come together to increase funding and awareness for those living with lymphatic disease. All registered participants will then be free to enjoy the Zoo on their own for the rest of the day. Don't miss this great event.

Run Wild on October 9th!

Kathy Bates featured in NIH MedlinePlus Magazine

NIH MedlinePlus Magazine interviewed LE&RN Spokesperson Kathy Bates about living with lymphedema and her activism.

Read the article about Kathy Bates here!

LE&RN Center of Excellence Spotlight: Lymphedema Program, McGill University Health Centre

Lymphedema Program, McGill University Health Centre located in Montreal, Canada, has been awarded LE&RN's Network of Excellence designation. Visit them on LE&RN's website to learn more about them and other Centers of Excellence.

Learn more about LE&RN's CoEs here!

Complete a Center of Excellence Survey

If you corresponded with or visited a LE&RN Center of Excellence please tell us your opinion about the service you received. Scores and comments will be shared with the center, but your personal information will remain confidential unless you indicate otherwise.

Complete a survey here!

LE&RN/LYMPHNOTES U.S. Lymphedema Therapist Scholarship; Application Deadline Friday, August 31, 2022

The application for the 2022 U.S. Lymphedema Therapist Scholarship is now open. This will allow LE&RN/LymphNotes to award up to eleven (11) scholarships. The LE&RN/LymphNotes U.S. Lymphedema Therapist Scholarship was established to meet the need for additional lymphedema therapists in the United States.

LE&RN/LymphNotes Award Amount: Up to $1,000 towards a Full Lymphedema Certification Course offered by a certification program at a qualified training school pre-approved by LE&RN. Funds will be applied directly to the course tuition. Scholarships may NOT be applied to courses that have been completed or are in progress prior to notification. Final decisions will be made by the review committee in September 2022.

Get complete details on LE&RN's website.

Apply today!

LE&RN welcomes the Tennessee Chapter!

We welcome plastic and reconstructive surgeon Dr. Stefanos Boukovalas and Hanna Crawford, NP as our first Co-Chairs of the Tennessee Chapter. Dr. Jesse Smith, a microsurgeon, serves as Treasurer. Dr. Jillian Lloyd serves as Secretary.

The Tennessee Chapter welcomes all patients, caregivers, families, and anyone within the state to join. Contact TNChapter@LymphaticNetwork.org for more information. Be sure to follow the TN Chapter Facebook Page
Marco Pisano, Ph.D, eMBA, and Valentina Triacca, Ph.D., are co-founders of Lymphatica Medtech, a medical device development company based in Lausanne, Switzerland. The company is a spin-off of the Swiss Federal Institute of Technology in Lausanne (EPFL) and of the Lausanne University Hospital (CHUV). With a team of mechanical, biomedical, clinical, and regulatory engineers, Lymphatica is developing LymphoDrain (TM), the first active implantable device for recirculation of interstitial fluid in patients affected by lymphedema.

LE&RN interviewed Dr. Triacca and Dr. Pisano to hear more about this exciting new technology in the treatment of lymphedema. Read the full interview on LE&RN's website.

LE&RN Symposiums

In July, LE&RN held two Symposiums: Radical Self-Care: Befriending Your Body, Learning to Love Yourself, and Food that Loves You Back with a Low Carb/Ketogenic Way of Eating presented by Catherine Seo, PhD and Carrie Reedy, BHSc, (Nut Med), FNLP.

As well we had LE&RN's first-ever Spanish-language Symposium, Surgical Treatment of Lymphedema, Experience of the Pablo Tobón Uribe Hospital Lymphedema Center in Medellin, Colombia, presented by Alejandro Zapata-Ospina, MD, MBA.

All past LE&RN Symposiums are available on LE&RN's website.

Visit LE&RN's Symposium page

Stanford Patient Survey

Do you have lymphedema? Please respond to this anonymous on-line survey

It will take only 3 minutes, but your participation is extremely important! The data that we collect will help us to inform doctors, hospitals, third party payers and the government about the lymphedema patient experience.
Take the survey!

Fellowship opportunities in lymphatics

There are 5 announcements for post-doc positions on complex lymphatic anomalies (Kaposiform lymphangiomatosis, Gorham-Stout disease, generalized lymphatic anomaly, and central conducting lymphatic anomaly) on LE&RN's website. The lastest posting on Cellular and Molecular Mechanisms of Human Lymphatic Disorders has an application deadline of September 1, 2022.

Find out more by clicking here

Become a LE&RN Supporting Member

LE&RN's education, research, and advocacy programs are only possible because of Corporate Sponsors and Supporting Members. Please acknowledge the support of these Corporate Sponsors (listed below) and support LE&RN through your membership.
Become a LE&RN Supporting Member

Upcoming Events

  • August 4, 2022 - 12pm ET - Leslyn Keith, OTD, CLT-LANA & Adie MacKenzie, PTA, LMT, CLT-LANA, NBC-HWC will present - Comprehensive & Creative Physical Management Strategies for Lipedema. Register Here.
  • September, 30, 2022 - LE&RN's 2022 Virtual Summit. Register here.
  • October 1, 2022 - Boston Lymphatic Symposium, Patient Symposium. Register here
  • October 9, 2022 - Run Wild with LE&RN at the Philadelphia Zoo for our first Run/Walk in PA. Register Here
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